Episodes

Season 1

  1. Nora’s Story
  2. Poet Tonya Ingram
  3. Artist Charlie Fitz
  4. Writer Alexa Wilding
  5. Playwright Matilda Ibini
  6. Artist Claudia Walder
  7. Illustrator & Fashion Designer Ronaé Fagon

Season 2
  1. Writer Kendall Ciesemier
  2. Director and Musician Chris Tartaro
  3. Writer and Performer Jezz Chung
  4. Entrepreneur Akilah Cadet
  5. Artist Ethan Lipsitz
  6. Artist and Spiritual Teacher Harshada David Wagner
  7. Writer and Director Ashley Eakin


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©2024 So, Life Wants You Dead

EP003 → Ehlers-Danlos Syndrome: Charlie Fitz On Using Art to Reclaim the Medical Narrative





In this episode, we talk to Charlie Fitz. Charlie is a UK-based sick and disabled artist, arts practitioner, writer, co-director of the remote artist studio TRIAD³ c.i.c and medical humanities postgraduate at Birkbeck, where she is a recipient of the Wellcome Trust studentship. 

Since becoming sick, Fitz has turned to her art practice as a meditative process, a form of disability activism, and as a means to understand and reclaim her experiences of illness and trauma. 

In today’s episode, we talk about Charlie’s experience with Ehlers-Danlos syndrome, her time in the hospital, and having to outsource care and fundraise for surgery. We also discuss mental health, interdependence, collective care and her art practice. 

Content warning: We talk about death and suicide in this episode. If you or a loved one is experiencing suicidal ideation or needs support, please reach out. Help is here for you.

Charlie's Instagram
Charlie's Website


Resources:

UK:  Samaritans: Call: 116 123 free

National Suicide Prevention Helpline at 0800 689 5652

USA: The National Suicide Prevention Lifeline is: 988